{"id":152217,"date":"2016-07-28T21:16:34","date_gmt":"2016-07-28T11:16:34","guid":{"rendered":"http:\/\/southburnett.com.au\/news2\/?p=152217"},"modified":"2020-10-08T16:40:35","modified_gmt":"2020-10-08T06:40:35","slug":"epilepsy-expert-shares-tips-with-gps","status":"publish","type":"post","link":"https:\/\/southburnett.com.au\/news2\/2016\/07\/28\/epilepsy-expert-shares-tips-with-gps\/","title":{"rendered":"Epilepsy Expert Shares Tips With GPs"},"content":{"rendered":"<figure id=\"attachment_152219\" aria-describedby=\"caption-attachment-152219\" style=\"width: 740px\" class=\"wp-caption aligncenter\"><a href=\"http:\/\/southburnett.com.au\/news2\/wp-content\/uploads\/2016\/07\/20160720panelli.jpg\"><img loading=\"lazy\" class=\"wp-image-152219\" title=\"20160720 PHN GP Workshop\" src=\"http:\/\/southburnett.com.au\/news2\/wp-content\/uploads\/2016\/07\/20160720panelli.jpg\" alt=\"\" width=\"740\" height=\"460\" srcset=\"https:\/\/southburnett.com.au\/news2\/wp-content\/uploads\/2016\/07\/20160720panelli.jpg 620w, https:\/\/southburnett.com.au\/news2\/wp-content\/uploads\/2016\/07\/20160720panelli-300x186.jpg 300w\" sizes=\"(max-width: 740px) 100vw, 740px\" \/><\/a><figcaption id=\"caption-attachment-152219\" class=\"wp-caption-text\">DDWM PHN Primary Care Engagement Manager Anne-Marie Donovan, from Toowoomba, with\u00a0Dr Rosey Panelli and\u00a0Margie Hams,\u00a0DDWM PHN\u00a0Practice Support &amp; Education Co-ordinator for the South Burnett and Western Downs<\/figcaption><\/figure>\n<p><strong>July 20, 2016<\/strong><\/p>\n<p>Epilepsy isn&#8217;t often considered a fatal condition &#8211; and fortunately, usually it isn&#8217;t &#8211; but the reality is that every year people with epilepsy DO die, and often the cause of death seems a mystery.<\/p>\n<p>This syndrome, which in ways mimics Sudden Infant Death Syndrome (SIDS) in babies, is known as Sudden Unexpected Death in Epilepsy (SUDEP).<\/p>\n<p>University of Melbourne Research Fellow Dr Rosey Panelli visited the South Burnett recently to raise awareness about SUDEP &#8211; and the management of epilepsy &#8211; amongst GPs, registrars, nurses, health care workers and medical students, .<\/p>\n<p>The visit was organised by the Darling Downs West Moreton Primary Healthcare Network (DDWM PHN).<\/p>\n<p>Dr Panelli has more than 20 years\u2019 experience in the research of epilepsy and is currently undertaking a study of unexplained epilepsy deaths in the ACT over the past 10 years.<\/p>\n<p>She told <strong>southburnett.com.au<\/strong>\u00a0she had become very interested in how GPs manage people with epilepsy after they return with a specialist diagnosis.<\/p>\n<p>Dr Panelli said GPs had an important role to play in helping people manage their seizures, and thus manage their risks of dying.<\/p>\n<p>&#8220;Seizures are the most common cause of death,&#8221; she said.<\/p>\n<p>Dr Panelli said the people most at risk of dying were those who had seizures at night. \u00a0The person is often found dead in bed, lying face down.<\/p>\n<p>&#8220;More people die from SUDEP every year than SIDS,&#8221; she said.<\/p>\n<p>She said \u00a0studies in the United Kingdom had identified four &#8220;red flags&#8221;, or risk factors, that GPs should be watching for in their patients with epilepsy.<\/p>\n<p><strong>These were:<\/strong><\/p>\n<ul>\n<li><strong>Alcohol use <\/strong>&#8211; While some doctors suggest a few alcoholic drinks won&#8217;t do any harm, there could be complicated interactions between alcohol and some drugs<\/li>\n<\/ul>\n<ul>\n<li><strong>Injury in the last 12 months<\/strong> &#8211; This could be any sort of injury, not necessarily obviously related to epilepsy<\/li>\n<\/ul>\n<ul>\n<li><strong>Not picking up their medications <\/strong>&#8211; GPs should be alert if their patients appear to not be following their medical plan<\/li>\n<\/ul>\n<ul>\n<li><strong>Depression <\/strong>&#8211; People with epilepsy have a higher risk of depression than the general population.<\/li>\n<\/ul>\n<p>Dr Panelli said GPs should be carefully monitoring their patients with epilepsy, and treating it &#8211; and billing it to Medicare &#8211; as a chronic disease which requires a management plan.<\/p>\n<p>She said special attention should be paid to women on anti-convulsant medications.<\/p>\n<p>&#8220;Women with epilepsy really need to plan their contraceptives. GPs need to be re-visiting this often, and if women are planning to have a child, either reduce their medication or change it,&#8221; Dr Panelli said.<\/p>\n<p>&#8220;But women should just not stop, \u00a0because that could trigger a seizure.<\/p>\n<p>&#8220;These are the sort of things that GPs need to be talking about more often with their patients.&#8221;<\/p>\n<p>Dr Panelli said more education was also required for forensic pathologists to recognise SUDEP deaths.<\/p>\n<p><strong>External links<\/strong><\/p>\n<ul>\n<li><strong><a href=\"http:\/\/www.epilepsyaustralia.net\/epilepsy-sudep\/\" target=\"_blank\" rel=\"noopener\">Epilepsy Australia &#8211; SUDEP<\/a><\/strong><\/li>\n<li><strong><a href=\"http:\/\/www.epilepsydeathsregister.org\" target=\"_blank\" rel=\"noopener\">Epilepsy Deaths Register<\/a><\/strong><\/li>\n<li><strong><a href=\"http:\/\/www.epilepsy.com\/get-help\/about-sudep-institute\" target=\"_blank\" rel=\"noopener\">The SUDEP Institute<\/a><\/strong><\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Epilepsy isn&#8217;t often considered a fatal condition &#8211; and fortunately, usually it isn&#8217;t &#8211; but the reality is that every year people with epilepsy DO die, and often the cause of death seems a mystery.<\/p>\n","protected":false},"author":20,"featured_media":152219,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[172,3],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v19.11 - 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